I'm tired of going to the hospital. I just want my baby girl to come home. Every time we go, another potential problem is explained to us.
They removed the central IV line the other night and we're hoping the smaller peripheral IV will continue to work for the next 7 days so we can continue her antibiotics and fluids. Her leg looked a little better to me but it's still pretty swollen.
They also decided to do an ultrasound of her head and found a small, Grade 1 brain bleed. I know it is common in preemies but for the love of God, can we get a freakin' break? The doctors don't seem overly concerned about it and said they don't expect any long-term effects. There's no treatment so I guess it just stops bleeding on its own?
While I was visiting her last night, someone from speech therapy came in to evaluate her feeding. They are concerned she might be aspirating (food going into her lungs) while she eats. Personally, I think they are starting to overevaluate things at this point. They called in the consult a few days ago because she wasn't eating that great.
Uh, duh? She's been sick? Who the hell eats when they are sick?
Since then, she has picked it up and has been taking about 2 oz at every feeding. So now, they are recommending a swallow study for Monday. They'll put barium in her milk and track where the fluid goes when she eats.
And then last night while she was being evaluated for that, another doctor comes in and introduces himself as the "blood doctor". They are also concerned she might have a clotting disorder called Thombophilia because the clot in her leg developed so quickly.
When I asked the doctor if clotting after that procedure was extremely uncommon, he said "no". I'm thinking, "Then why are you here"? We have no family history of blood disorders and according to the March of Dimes website, that condition only occurs in about 2% of the population.
I guess I'm starting to get a little aggrevated. I know they are only looking out for Kendall's health and best interests but it would be nice to go for a visit and not have another doctor telling me that something else could be wrong with her.
On the brightside, she is now in an open-air crib again and got moved back down to the regular pediatric unit. She looked good last night and was the most active and alert that I've seen her since this started. I even got a few smiles.
God, I love those smiles.
8 comments:
that a girl... just keep plugging... give that baby girl an extra squeeze ((hug)) from me.... !
Take care....
You poor thing! Doctors are so worrisome sometimes! Hang in there! Still praying for her and you!
Wow, I can only imagine what you are going through. I hope your baby girl is home safe soon and this will all be a distant memory.
I wish this sweet lil girl didn't have to go through so much... as much as it sucks to see a new doctor everytime, over analyzing each and every aspect... it probably is a good thing... so that in the long run you are assured that things are headed in the right direction without any surprises. Praying for you all to get through this safe and sound!
Thinking of you guys...hope she can come home soon.
How stressful it must be to be told something scary every day! I'm glad those smiles are bringing you some comfort :) Hang in there!
I know it does seem frustrating, but like I always tell my patient families at work-- you'd rather stay an extra day to check for something in the hospital and go home and STAY HOME as opposed to going home and having to come back in a day or two. Here's praying --------- (that was me stopping to pray!) that she'll be well and home soon!
I am praying for Kendall!! :)
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